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Mayo lung disease patient thanks new drug for health breakthrough

ROCHESTER, MINN (KTTC) - A man born with a life threatening lung disease is now living life differently, since trying a new FDA approved drug.

Tim Myer has Cystic Fibrosis, a genetic disease that affects roughly 700 people in Minnesota.

"It's a disease that mucus builds up. There was just no energy, that was my biggest thing, no energy to do anything. I just wanted to lay around. I couldn't breathe. Now I can breathe, I got energy. It's a whole new outlook on life," Myer said.

His energy boost can be credited to the drug named Trikafta. It involves taking two morning and one evening pill. Myer has to take this drug for the rest of his life.

Dr. Mark Wylam, a Mayo Clinic Pulmonologist, is Myer's doctor and said within a month this treatment has dramatically improved Myer's lungs.

"It will fix the gene protein problem for about 90 percent of all patients with Cystic Fibrosis," Wylam said.

Wylam said the average life expectancy for these patients are 44 years, but this drug can allow patients a regular life span.

As for Myers, with more years ahead of him, he is now ready to live the rest of his life to its fullest in honor of his sister, Crystal, who passed at 24 from the same disease.

"Its kind of bittersweet I wish it would of been around when she was around, but knowing now what I know, now I can live the life she wanted she's living through me," Myer said.

Trikafta costs more than $300,000 a year. However, in Myer's case the cost is being taken on by his insurance.

KaMaria Braye

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